The Canadian Frailty Priority Setting Partnership: Research Priorities for Older Adults Living with Frailty

Authors

  • Jennifer Bethell University Health Network
  • Martine T.E. Puts University of Toronto
  • Schroder Sattar University of Toronto
  • Melissa K. Andrew Dalhousie University
  • Andrew S. Choate
  • Barry Clarke Dalhousie University
  • Katherine Cowan University of Toronto
  • Carlo DeAngelis Sunnybrook Health Sciences Centre
  • Jacobi Elliott University of Waterloo
  • Margaret I. Fitch University of Toronto; Canadian Partnership Against Cancer
  • Chris Frank Queen’s University; Nova Scotia Health Authority
  • Kathryn Hominick Nova Scotia Health Authority
  • Margaret Keatings
  • Janet E. McElhaney Health Sciences North Research Institute, Laurentian University
  • Sandra M. McKay VHA Home HealthCare; University of Toronto
  • Eric Pitters
  • Jenny Ploeg McMaster University
  • Souraya Sidani Ryerson University
  • Katherine S. McGilton University Health Network; University of Toronto

DOI:

https://doi.org/10.5770/cgj.22.336

Keywords:

frailty, research, patient engagement, patient and public involvement, research priorities

Abstract

Background

Patient engagement in research priority-setting is intended to democratize research and increase impact. The objectives of the Canadian Frailty Priority Setting Partnership (PSP) were to engage people with lived or clinical experience of frailty, and produce a list of research priorities related to care, support, and treatment of older adults living with frailty.

Methods

The Canadian Frailty PSP was supported by the Canadian Frailty Network, coordinated by researchers in Toronto, On-tario and followed the methods of the James Lind Alliance, which included establishing a Steering Group, inviting partner organizations, gathering questions related to care, support and treatment of older adults living with frailty, processing the data and prioritizing the questions.

Results

In the initial survey, 799 submissions were provided by 389 individuals and groups. The 647 questions that were within scope were categorized, merged, and summarized, then checked against research evidence, creating a list of 41 unanswered questions. Prioritization took place in two stages: first, 146 individuals and groups participated in survey and their responses short-listed 22 questions; and second, an in-person workshop was held on September 26, 2017 in Toronto, Ontario where these 22 questions were discussed and ranked.

Conclusion

Researchers and research funders can use these results to inform their agendas for research on frailty. Strategies are needed for involving those with lived experience of frailty in research.

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Published

2019-03-04

How to Cite

1.
Bethell J, Puts MT, Sattar S, Andrew MK, Choate AS, Clarke B, Cowan K, DeAngelis C, Elliott J, Fitch MI, Frank C, Hominick K, Keatings M, McElhaney JE, McKay SM, Pitters E, Ploeg J, Sidani S, McGilton KS. The Canadian Frailty Priority Setting Partnership: Research Priorities for Older Adults Living with Frailty. Can Geriatr J [Internet]. 2019 Mar. 4 [cited 2022 Nov. 26];22(1):23-3. Available from: https://cgjonline.ca/index.php/cgj/article/view/336

Issue

Section

Original Research